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DLBCL Disease Module #1356

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DLBCL Disease Module #1356

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mickohanlon23
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Module Describing Clinical Treatment of Diffuse Large B-Cell Lymphoma.
Starts from initial, and covers DLBCL symptoms, diagnosis, staging, and treatment. Chance of survival is assigned based upon diagnosed cancer stage, and alligns with 5-year DLBCL survival rates, as reported by NCI SEER. Module aligns with mCODE data elements where possible.

Primary sources for information gathering:

  1. NCI SEER: https://seer.cancer.gov/statfacts/html/dlbcl.html
  2. Lymphoma Research Foundation: https://lymphoma.org/
  3. American Cancer Society: https://www.cancer.org/cancer/non-hodgkin-lymphoma/
  4. Official Journal of the National Comprehensive Cancer Network: https://jnccn.org/
  5. Conversation with Dr. William A. Wood, UNC hematologist and oncologist with a clinical focus in blood cancers
  6. Conversation with Dr. Miguel-Angel Perales, MSKCC Chief, Adult Bone Marrow Transplant Service

The primary author of this module is Jenn Holmes ([email protected]).

@dehall
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dehall commented Aug 24, 2023

Thanks for submitting this @mickohanlon23 !

For context, this module was developed a few years ago and data based on this module was published at https://confluence.hl7.org/display/COD/mCODE+Test+Data .
If we want to make changes I don't expect Mick to have bandwidth to make them himself. Hopefully we think this is great and it needs no changes. If we want any changes we will likely have to take this and run with it ourselves, or potentially put it into an "experimental modules" folder

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